"Surreal" is the best word to describe what's happening around me. My dad has been diagnosed with Stage IV lung cancer with a possible lesion in his liver. We'll know the results later this week from his PET scan that was performed today. My dad asked the oncologist how long he had. The doctor kept saying, "Do you really want to know?" I think he asked my dad three times. He finally said, "ten months." But he said they don't like to tell their patients the estimate, which I understand. With chemo, it could be longer. If it's metastasized into the liver, it could be shorter.
Phyllis had her D and C last Tuesday. After waiting through a weekend that seemed to go on forever, the doctor called last night after hours. We had given up on him calling. When I was taking Buddy outside, I was wondering if he might call after his office closed. I walked back in the condo and Phyllis is on the phone. She's waving me over to the other phone to pick it up. I'm trying to judge by her facial expressions what he's said so far. I click the button and hear "oncologist." Phyllis tells him I'm on the phone and she repeats what the doctor had told her to confirm it: endometrial cancer. He wanted to confer with the oncologist today to make absolutely certain it was cancer before he called. The oncologist had an appointment opening this morning. Phyllis has a CA-125 blood test tomorrow to check for ovarian cancer and a CAT scan with contrast to make sure it hasn't spread outside the uterus. After they get those results, they'll decide on treatment (chemo/radiation). Surgery should be in the next three weeks when the OBGYN surgeon and the oncologist can coordinate a date.
While I was listening to him talk, I moved to a chair and sank down. I had feared Phyllis had uterine cancer because she was exhibiting a lot of the symptoms. In fact, we both thought she probably had uterine cancer. But thinking it and hearing it confirmed are two entirely different things.
After we got off the phone, we hugged each other and cried. Then we made phone calls. I sent out e-mails.
I had a therapist appointment today at 11:00. Phyllis's appointment was at 9:30. I told her I wasn't going to the therapist appointment. But she came out of his office and insisted I go (my therapist's office is just across the street from the hospital complex). She had to talk to them about scheduling the tests.
During my appointment with my therapist, I told him this was "surreal." And that I felt like I was watching someone else going through all of this. He said, "You realize that is normal, don't you?" I did. I also told him I found myself "compartmentalizing." That there was my dad's cancer and there is Phyllis's. I can't think of them at the same time. It was the only way I could deal with it.
My brother is coming in from overseas next weekend and will be here two weeks, which is good. We can talk as a family. And Phyllis has such a strong relationship with her family. Her family is my family, and mine is hers. We're very blessed that way.
The really odd thing was, as we were sitting in the oncologist exam room waiting on the resident to come in first, I stared at the linoleum. I was tapping my foot and my knee was bouncing. And I thought that this is just like the scene from my book, Two for the Show, when Lisa and Frankie were waiting for Frankie's doctor to enter the room to discuss the lump they had found in her breast. Again... surreal.
We've decided to still go on our trip to Atlanta for my book launch party Friday night. We'll be leaving early Thursday morning. We both need to get away, if only for a few days.
Phyllis is worried about me dealing with my dad and now this. I'm worried about my dad and her. But as long as I talk about it and continue to allow myself to feel what I'm feeling (like crying when I need to), I'll be okay. And as long as Phyllis is by my side, I'm okay. She has such a strong faith in God. She keeps saying, "I'm right where God wants me to be. Whatever happens, happens. He'll look over us." You know how some people say those words, but they're just words? They don't really mean them? But Phyllis? She means every word.
So we pray. We stay together as a family. And we accept that sometimes, that's the only thing you can do.
Chris Paynter, Author
Tuesday, February 21, 2012
Monday, February 13, 2012
Random words... not quite a poem...
A blade of grass, a soft breeze, a vague memory of playing with childhood friends.
Life passes so quickly... the years become a blur.
But I hear the distant voices of my youth...
"Can Chrissy come out to play?"
And away I went on another adventure, another game of army, another game of football.
Life passes so quickly...
I still hear those voices, but only when I take time to watch the blade of grass move gently in the wind.
I feel like that blade of grass... fragile, yet strong, as I hold my own against the turmoil in my...
Life that passes so quickly....
Life passes so quickly... the years become a blur.
But I hear the distant voices of my youth...
"Can Chrissy come out to play?"
And away I went on another adventure, another game of army, another game of football.
Life passes so quickly...
I still hear those voices, but only when I take time to watch the blade of grass move gently in the wind.
I feel like that blade of grass... fragile, yet strong, as I hold my own against the turmoil in my...
Life that passes so quickly....
Friday, February 10, 2012
Reality....
As I suspected, the phone call a week ago from the doctor's office was a mistake. What the woman should have said is "the results were inconclusive" and never uttered the words "good news" or "benign." The biopsy results came back on the second procedure my dad had done, and it is lung cancer. The next step is an appointment with the oncologist on February 14, the same day Phyllis has her D and C. Her procedure is at 6:45 a.m. I'm hoping I can get her settled at home and resting, then accompany my parents to the oncologist appointment in the afternoon.
I'm glad I was able to talk to my parents and make sure they didn't accept the "benign" diagnosis but rather wait until this next procedure. That I thought it meant the doctor hadn't gotten enough of the mass for an accurate pathology report. And thank God, we were all being realists about this. It doesn't take away the anger I have with the phone call giving my parents that little bit of hope last Friday morning. It wasn't handled right. At all.
My parents sound remarkably okay over the phone. I wasn't able to go to the pulmonologist appointment yesterday afternoon. I was at my own appointment on the far northside and couldn't be reached. Phyllis and I didn't find out until last night. In order to get their minds off everything, my parents went to the casino and didn't get back until late. After we got off the phone, Phyllis started crying. I held her. Then it was her turn to hold me while I cried.
I'm sitting here listening to my "Most Relaxing Classical Music in the Universe" double CD. Samuel Barber's "Adagio for Strings" just played. It's such a haunting melody and it fits my mood. Now, I think I'll put in some Melissa Etheridge and tune out the world.
Sometimes, reality sucks.
I'm glad I was able to talk to my parents and make sure they didn't accept the "benign" diagnosis but rather wait until this next procedure. That I thought it meant the doctor hadn't gotten enough of the mass for an accurate pathology report. And thank God, we were all being realists about this. It doesn't take away the anger I have with the phone call giving my parents that little bit of hope last Friday morning. It wasn't handled right. At all.
My parents sound remarkably okay over the phone. I wasn't able to go to the pulmonologist appointment yesterday afternoon. I was at my own appointment on the far northside and couldn't be reached. Phyllis and I didn't find out until last night. In order to get their minds off everything, my parents went to the casino and didn't get back until late. After we got off the phone, Phyllis started crying. I held her. Then it was her turn to hold me while I cried.
I'm sitting here listening to my "Most Relaxing Classical Music in the Universe" double CD. Samuel Barber's "Adagio for Strings" just played. It's such a haunting melody and it fits my mood. Now, I think I'll put in some Melissa Etheridge and tune out the world.
Sometimes, reality sucks.
Friday, February 3, 2012
From one extreme to the other....
This morning, on our way to Phyllis's doctor's appointment, we got a phone call from my parents. The pulmonologist's office called and said, "We have good news. It's benign." But they also scheduled another procedure for my dad next Wednesday where he has blood work done at 6:30 a.m., plus some other procedure where he's put under and is asleep for four hours. My parents were a little sketchy on details. I don't know if this is where the doctor goes through the chest wall with a needle. He said he thought he had gotten to the mass but wasn't sure if he got enough tissue. I do know whatever my dad is having done Wednesday is to confirm 100% that it is NOT cancer. I just don't know if it's the procedure the pulmonologist had talked about on Tuesday.
While I'm very happy about this report, I'm almost afraid to be too happy. I don't think I will be completely relieved until they confirm everything.
I don't know how the doctor could stand there and say, "Yes, it is cancer" and start talking about chemo and radiology. I almost want to smack him when I see him again for putting us through this if it does turn out to be benign, which I hope to God it does. I tried calling my mom and dad, but I think they may be out celebrating at the casino.
I hope to be completely ecstatic when they get the results back from this latest procedure.
Phyllis's D and C is scheduled for February 14. The doctor explained everything to us this morning, that he wasn't worried about the fibroids. But he is concerned about the bleeding and the thickening of the lining of the uterus. I look forward to the end of this month when alllll of this is resolved. I feel like a yo-yo or that I've been on a roller coaster, you know? At least a roller coaster of emotions....
While I'm very happy about this report, I'm almost afraid to be too happy. I don't think I will be completely relieved until they confirm everything.
I don't know how the doctor could stand there and say, "Yes, it is cancer" and start talking about chemo and radiology. I almost want to smack him when I see him again for putting us through this if it does turn out to be benign, which I hope to God it does. I tried calling my mom and dad, but I think they may be out celebrating at the casino.
I hope to be completely ecstatic when they get the results back from this latest procedure.
Phyllis's D and C is scheduled for February 14. The doctor explained everything to us this morning, that he wasn't worried about the fibroids. But he is concerned about the bleeding and the thickening of the lining of the uterus. I look forward to the end of this month when alllll of this is resolved. I feel like a yo-yo or that I've been on a roller coaster, you know? At least a roller coaster of emotions....
Thursday, February 2, 2012
Waiting for the prognosis...
My dad's bronchoscopy showed a large mass that the pulmonologist said was cancer. He showed me the images on the computer screen. The photographic image looks exactly like a photo I saw in a medical text book in college showing a lung with a malignancy. Knowing it's your dad's... I don't know how to explain it. It seems surreal. And talking to the doctor, I almost felt like I wasn't there as I asked questions with a detachment--like it wasn't me asking the question. It was after he walked away that I allowed it to sink in. But I know none of this has hit me the way it will in the coming months. I have periods when I cry, then they pass. My dreams have been disjointed, so that when I wake up, I don't really feel like I've rested.
I'm trying to stay busy. My day job is helping in that regard. But I need to do my own writing. I'm sitting here listening to Elvis's "Ultimate Gospel." I try to draw comfort from little things like this.
Tomorrow is the visit to Phyllis's doctor appointment. We'll see how that goes. Just spoke with my dad. I've been dreading picking up the phone when I see it's my parents' number. His doctor's office called while they were out. He has to go through another procedure. The doctor must not have gotten all the way to the mass. He had told me if they didn't, they'd have to go through the chest wall. That will probably be next week.
On a totally different note, it's been crazy here in Indy with the Super Bowl and it got crazier with the out-of-towners arriving today. It's cool, though. Phyllis is working at the City County Building's observatory deck tonight, running the elevator until ten. She said Lucas Oil Stadium looks fantastic with spotlights and a huge Super Bowl XLVI sign out front.
Okay... time for dinner. Thank you, Elvis, for these songs.
I'm trying to stay busy. My day job is helping in that regard. But I need to do my own writing. I'm sitting here listening to Elvis's "Ultimate Gospel." I try to draw comfort from little things like this.
Tomorrow is the visit to Phyllis's doctor appointment. We'll see how that goes. Just spoke with my dad. I've been dreading picking up the phone when I see it's my parents' number. His doctor's office called while they were out. He has to go through another procedure. The doctor must not have gotten all the way to the mass. He had told me if they didn't, they'd have to go through the chest wall. That will probably be next week.
On a totally different note, it's been crazy here in Indy with the Super Bowl and it got crazier with the out-of-towners arriving today. It's cool, though. Phyllis is working at the City County Building's observatory deck tonight, running the elevator until ten. She said Lucas Oil Stadium looks fantastic with spotlights and a huge Super Bowl XLVI sign out front.
Okay... time for dinner. Thank you, Elvis, for these songs.
Friday, January 27, 2012
What is the purpose of a blog?
I remember way back when, asking a friend, "What the hell is a blog?" She explained it's like a diary or something similar where you tell people out in cyberspace your thoughts, experiences, etc. and they can comment back. I thought... huh. Then did nothing with it because I had no need.
Fast forward to 2009 when Playing for First was published. I bought a domain and using a template, designed my website. I posted my goings-on there. But then I thought, hmm... would readers be more apt to read a blog? So, like other authors, I started a blog. Once I did, I was never sure the limitations I should put on the posts. Should it be about my writing? Yes. Should I talk about other fun stuff? Yeah. But what about my home life? Where do you draw the line? I decided to err on the side of caution and keep things pretty general. I remember commenting to another author once when talking about my own blog: "I have no idea who reads this s***." Occasionally, I'd get a comment or a reader would come up to me at GCLS and say, "I saw on your blog..." But I had no real feel if I was on the "right" track. I watched what other authors wrote and still wasn't sure of myself.
Well, tonight, that stops. Tonight, I write about what is close to my heart and not worry if it's right or wrong or how others view it. I write for me and will continue to do so for the next several months. If anything, it will be a catharsis.
Monday, my dad had a chest x-ray because his heart doctor didn't like what he was hearing. At all. By the time my parents got home, there was a message on their phone. There is a mass in his left lung. I went to the pulmonologist with him Tuesday. The mass is into the chest wall. Wednesday, he had a CT scan. Next Tuesday, he goes in for a biopsy.
My dad has smoked almost his entire life, since the age of seven. He grew up in a period when it was considered cool--the 1940s. No Surgeon General warnings. No dire predictions as to how it would affect your health. Of course over the years, things changed. Doctors did become aware of the dangers of tobacco use. My father tried quitting on numerous occasions, especially in recent years. But nicotine is a hard addiction to break. Especially smoking the hard stuff like my dad does.
Even though I've been worried for quite some time, it's still a shock to your system when facing what we think he's facing. We of course won't know for certain until after the biopsy. But I don't think it's a good sign when a doctor uses words like "I don't like what I'm hearing," "This is not good," and "it's very probable it's cancer."
My dad and I are very close. I've always been more like his youngest son than his only daughter. This week, things keep flashing in my mind like going fishing with him as a kid and having him tell me, "Sis, you have to be very quiet or the fish will hear you and stay away." When I got older, I realized it was his way of keeping his daughter from chattering nonsense while fishing. I was an unusual child in that when we'd visit other Air Force buddies, rather than go and play with the kids, I'd prefer to stay out and listen to and talk to the adults. My dad always allowed it.
Because of his love of history, I learned a love for history, especially World War II and Civil War history. We'd talk about Normandy and the great odds the Allied soldiers faced there. We'd talk about Hitler and his generals. About Eisenhower and Patton. About the concentration camps. About the battles. And I became enthralled with hearing about Lee and Grant and the Civil War battlefields. About Chancellorsville, Gettysburg. The ineptitude of McClellan. About Lincoln who quickly became my favorite President.
My dad taught me my love of sports. I remember watching the Chicago Bears on a little black and white TV and deciding Dick Butkus was my favorite player. I kept questioning my dad until I understood the various calls the officials made. Because my dad served in the Air Force at Wright Patterson AFB, he'd get tickets to the Cincinnati Reds games during the height of the Big Red Machine. My brother and I would go down with him to as many games as we could. It's only fitting that Pete Rose broke the all-time hits record on my dad's birthday. We'd also discuss how, if a woman could play on a professional men's team, it'd be Major League baseball.
I fell in love with old black and white movies because of my dad. Movies like The Ghost and Mrs. Muir with Gene Tierney. Claudette Colbert in Since You Went Away. Jimmy Stewart in It's a Wonderful Life....
I started thinking about it and realized how much all this influenced my writing with Playing for First and Two for the Show and Amy Perry playing first base for the Reds. With my most recent release, Survived by Her Longtime Companion, I called on that love for old movies and movie stars when writing about the character of Daphne DeMonet.
All of these snippets of my 50 years with my dad have been running through my mind.
Phyllis is facing surgery in February after abnormal test results. We won't know until after that surgery what the outcome will be, but there's a very good chance there will be further surgery. Of course I'm praying for the best, but at the same time I'm very worried--for my dad and my wife.
This has been a tough week and I anticipate tougher ones ahead. I hope to be strong for my mom who is understandably taking this extremely hard. She's also not in the best of health. I hope to be strong for Phyllis. In the meantime, I'm turning to what has given me solace in life--my writing. Whether it's to blog or to work on my next book, From Third to Home.
So... what is the purpose of a blog? I finally decided it really doesn't matter.
Fast forward to 2009 when Playing for First was published. I bought a domain and using a template, designed my website. I posted my goings-on there. But then I thought, hmm... would readers be more apt to read a blog? So, like other authors, I started a blog. Once I did, I was never sure the limitations I should put on the posts. Should it be about my writing? Yes. Should I talk about other fun stuff? Yeah. But what about my home life? Where do you draw the line? I decided to err on the side of caution and keep things pretty general. I remember commenting to another author once when talking about my own blog: "I have no idea who reads this s***." Occasionally, I'd get a comment or a reader would come up to me at GCLS and say, "I saw on your blog..." But I had no real feel if I was on the "right" track. I watched what other authors wrote and still wasn't sure of myself.
Well, tonight, that stops. Tonight, I write about what is close to my heart and not worry if it's right or wrong or how others view it. I write for me and will continue to do so for the next several months. If anything, it will be a catharsis.
Monday, my dad had a chest x-ray because his heart doctor didn't like what he was hearing. At all. By the time my parents got home, there was a message on their phone. There is a mass in his left lung. I went to the pulmonologist with him Tuesday. The mass is into the chest wall. Wednesday, he had a CT scan. Next Tuesday, he goes in for a biopsy.
My dad has smoked almost his entire life, since the age of seven. He grew up in a period when it was considered cool--the 1940s. No Surgeon General warnings. No dire predictions as to how it would affect your health. Of course over the years, things changed. Doctors did become aware of the dangers of tobacco use. My father tried quitting on numerous occasions, especially in recent years. But nicotine is a hard addiction to break. Especially smoking the hard stuff like my dad does.
Even though I've been worried for quite some time, it's still a shock to your system when facing what we think he's facing. We of course won't know for certain until after the biopsy. But I don't think it's a good sign when a doctor uses words like "I don't like what I'm hearing," "This is not good," and "it's very probable it's cancer."
My dad and I are very close. I've always been more like his youngest son than his only daughter. This week, things keep flashing in my mind like going fishing with him as a kid and having him tell me, "Sis, you have to be very quiet or the fish will hear you and stay away." When I got older, I realized it was his way of keeping his daughter from chattering nonsense while fishing. I was an unusual child in that when we'd visit other Air Force buddies, rather than go and play with the kids, I'd prefer to stay out and listen to and talk to the adults. My dad always allowed it.
Because of his love of history, I learned a love for history, especially World War II and Civil War history. We'd talk about Normandy and the great odds the Allied soldiers faced there. We'd talk about Hitler and his generals. About Eisenhower and Patton. About the concentration camps. About the battles. And I became enthralled with hearing about Lee and Grant and the Civil War battlefields. About Chancellorsville, Gettysburg. The ineptitude of McClellan. About Lincoln who quickly became my favorite President.
My dad taught me my love of sports. I remember watching the Chicago Bears on a little black and white TV and deciding Dick Butkus was my favorite player. I kept questioning my dad until I understood the various calls the officials made. Because my dad served in the Air Force at Wright Patterson AFB, he'd get tickets to the Cincinnati Reds games during the height of the Big Red Machine. My brother and I would go down with him to as many games as we could. It's only fitting that Pete Rose broke the all-time hits record on my dad's birthday. We'd also discuss how, if a woman could play on a professional men's team, it'd be Major League baseball.
I fell in love with old black and white movies because of my dad. Movies like The Ghost and Mrs. Muir with Gene Tierney. Claudette Colbert in Since You Went Away. Jimmy Stewart in It's a Wonderful Life....
I started thinking about it and realized how much all this influenced my writing with Playing for First and Two for the Show and Amy Perry playing first base for the Reds. With my most recent release, Survived by Her Longtime Companion, I called on that love for old movies and movie stars when writing about the character of Daphne DeMonet.
All of these snippets of my 50 years with my dad have been running through my mind.
Phyllis is facing surgery in February after abnormal test results. We won't know until after that surgery what the outcome will be, but there's a very good chance there will be further surgery. Of course I'm praying for the best, but at the same time I'm very worried--for my dad and my wife.
This has been a tough week and I anticipate tougher ones ahead. I hope to be strong for my mom who is understandably taking this extremely hard. She's also not in the best of health. I hope to be strong for Phyllis. In the meantime, I'm turning to what has given me solace in life--my writing. Whether it's to blog or to work on my next book, From Third to Home.
So... what is the purpose of a blog? I finally decided it really doesn't matter.
Sunday, December 18, 2011
Happy Holidays to All!
With the coming holiday week, I want to take the time to wish everyone Happy Holidays! If you're traveling, may your travels be safe. If you're staying home, may you stay cuddly and warm, surrounded by the love of good friends and family.
I also want to take the time to thank all the readers! I know myself how tight it is, especially to have any extra money to spend on books. Thanks for spending some of that money on my books and on other authors' books. And I'd especially like to thank those who take the time to write to tell me what you think of my books, either an e-mail or a quick note on Facebook.
Survived by Her Longtime Companion is still scheduled for release next month. If you'd like to read an excerpt, please go here: http://www.ckpaynter.com/excerptsurvivedbyherlongtimecompanion.html. Let me know what you think!
Again, Happy Holidays to all!
I also want to take the time to thank all the readers! I know myself how tight it is, especially to have any extra money to spend on books. Thanks for spending some of that money on my books and on other authors' books. And I'd especially like to thank those who take the time to write to tell me what you think of my books, either an e-mail or a quick note on Facebook.
Survived by Her Longtime Companion is still scheduled for release next month. If you'd like to read an excerpt, please go here: http://www.ckpaynter.com/excerptsurvivedbyherlongtimecompanion.html. Let me know what you think!
Again, Happy Holidays to all!
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